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I Am Currently In Hospital Having Had A Tracheostomy After 8 Years Of Fighting Nasopharyngeal Cancer.

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Handoftheking | 08:43 Wed 03rd Aug 2016 | Body & Soul
9 Answers
I have been trained to clean the tube, nebulise, use RIG for feeding and administering meds. What I find hard to manage is how to expel the phlegm that builds up. The training is patchy and I'm going home soon. Everyone is so busy! Are there any youtube videos that might give practical advice? Does anyone know any forums or help groups. Appreciate any help.
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https://www.facebook.com/groups/41426522671/ https://www.facebook.com/groups/6668157146/ Lots of groups here:... https://www.google.co.uk/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=nasopharyngeal%20cancer%20support%20group
10:32 Wed 03rd Aug 2016
oh dear sorry to hear of your travails...you will be given a care package before you go home..home visits from nurse who will be able to demonstrate to you...best wishes xx
Make sure you tell the nurses that you need more help to manage this before you are discharged. They are always busy but this is important so let them know.
sorry to hear of your disability

google - tracheostomy self care guide
which gives a few sites

the fella who really knows the answer - sqad is currently silent
Do Not go home until you are totally confident in caring for yourself. Best wishes.
you will most likely be asked to perform this task for them before you leave in any case..but after care will always be arranged prior to leaving
I agree with the others don't leave before you fully understand what to do .I wish you all the best xx
I so agree with everything that has been said above. It is important that you make the health professionals realise that you are not confident that the help you have received has been enough, and that you need more support. Don't be afraid to ask for what you need, and to express your fears if you still do not feel confident. I wish you all the best and hope you can get the help you need. Hugs.
You should have access to respiratory physiotherapy to help you with this, ask them to review you before you go.

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