Lymphoma In The Elderly

[viv41]

I have a very dear and close elderly relative who has recently been diagnosed with lymphoma. The whole thing has taken literally months from scans, X rays to a biopsy, diagnosis (last week) and now when she had to visit the hospital yesterday to, we thought, find out what treatment she needs, they took yet more blood samples from her and STILL no sign of any treatment, as she has to wait for the results of these blood tests! Why is it taking so long? It worries me that she is 84 and that is why they are not rushing things - hope I'm not right. She looks well, feels well and eats well, but surely she needs to start treatment ASAP ?? Sqad ??

[slaney]

I would hope so, but without knowing the details and results of tests it's difficult to be sure.
Perhaps you could update us.

[viv41]

I would hope so too slaney as it has literally been going on for months now. She has had quite a few blood tests. I will up-date.

Thank you again.

[Sqad]

viv.....slaney's experience of these disorders will be greater than mine and her advice and prognosis would more accurate.
I wish your friend well and will back out of this thread unless i can be of further help

[viv41]

I have appreciated your input Sqad.

[Peter Pedant]

Hi Slaney
blimey slaney I thought you did something else completely !
say Hi to your famous and rich husband for me !

I had a retroorbital recurrence and a lateral orbitotomy Aug 17th which seeded the whole of my orbit with clag
I had one course of RGVPP and lost my cornea Oct 15 so they sewed my eyelids together and it sort of came back \fer a few weeks. and then Jan 16 day 1 of course two and was too cytopaenic for day 8 Gem and so I am pencilled in for course three at beginning of feb. 16. I have atrial fib from dauno and a cardiac index of 32% so a BMT is definitely out on the grounds it will kill me.

Prof Radford has an invited editorial in the new england journal Dec 26th - "lymphoma and all it means" or something so I couldnt as a patient resist emailing him congratulation ( before his junior staff had done so and crawled up to him with photocopies to sign ) so now they Officially Hate me

Viv's fren sounz in better condition than I do really- but ho hum c'est la vie .....64 isnt exactly adolescent ....

[slaney]

Gee Peter - you've been through the mill.
Bad luck about the anthracycline toxicity - did you have much of a cumulative dose?
If you are being treated at the Christie you are in good hands - carry on keeping the young on their toes.

I hesitate to ask what you thought I did :)

In any case best of luck with it all...

[viv41]

I reiterate, she is a much loved relative, not a friend.

[Peter Pedant]

// Viv's fren sounz in better condition than I do really- but ho hum c'est la vie .....64 isnt exactly adolescent ....//

sorry Viv - your rel sounz in better condition ....

and the committee thinks : wait for the reference lab report - mine was within two weeks. Review the scans for the extent of the disease

and then the consultant will discuss with the patient the most appropriate treatment.

[viv41]

She goes to the hospital next Wed pp, I hope things move along then, it seems to be taking way too long.

[viv41]

Oh wonderful, wonderful news. She has just rung me, she has been given the ALL CLEAR and doesn't have to go back to the hospital for six months !! They could find no cancerous cells after her last blood tests came back clear. No wonder she looked well, felt well and ate well, there was nothing to worry about ! Hugs and kisses all round at the hospital, thank God ...... The only regret is it took too long (five months) to come to this conclusion and there was a hell of a lot of worry during that time.

[Sqad]

Fantastic outcome........yes.....5 months IS a long time, but the end certainly justifies the means.

[viv41]

Thank you Sqad x