No End In Sight

[bazwillrun]

http://metro.co.uk/2013/11/23/britains-biggest-lottery-winners-pay-for-girl-4-to-have-pioneering-cerebral-palsy-surgery-4198514/

NHS refuse to fund op but seems able to pay for prisoner to have sex change ops (recent story)

and we can find money for immigrants to have flying lessons (recent story)etc etc etc thew list just goes on and on

and if you can be bothered to look at some of the "projects" the lottery has funded over the years without being sick to the pit of your stomach..and this poor kids parents have to go begging

what a disgrace this country is becoming...we are just sinking lower and lower

[Sqad]

Gromit...you have told me all that i knew........what is your point?

[Gromit]

sqad

The hospital that did her operation does this surgery on the NHS. So the premise of the OP is wrong. Unless it was her NHS Trust which paid for the prisoner to have a se change.

It could be postcode lottery or it could be another reason that she went private.

[Sqad]

Gromit,

I am answering, or trying to answer why this operation was not available on the NHS to the patient.....the girl with the cerebral palsy.

You seem to be referring to the sex change operation.

[Gromit]

sqad

The OP asked why this kid was denied the operation when a prisoner got a sex change.

The answer is we do not know.

The hospital where she had the operation privately at allegedly £40,000 does the operation for 'free' on the NHS.

Unless the little girl's NHS Trust had spent all its money on gender realignment surgery, then it is not a fair question.

[Gromit]

// I am rather confused as to why the NHS felt that the money for the operation was unjustifiable. //

We do not know why she was denied the operation on the NHS. It may not have been anything to do with money, we are only assuming that.

----------



// Selective dorsal rhizotomy (SDR)

Selective dorsal rhizotomy (SDR) is a surgical procedure that is normally only recommended when other treatments for muscle stiffness and overactivity have been tried and failed.
It is a major operation used to treat lower limb spasticity, which involves cutting some of the sensory nerves in the lower spinal column. This can reduce muscle stiffness in the legs, as well as cramps and spasms.
However, children who have SDR will require extensive physiotherapy, lasting three to nine months, to 'relearn' basic motor skills such as walking.
Also, this type of surgery has caused complications in some children, including:
an unpleasant tingling sensation, like pins and needles, in the part of the body that the removed nerves used to be connected to
constipation
problems urinating
Less common complications include:
breathing difficulties
lung infections
You and your child (if they are able to understand the implications of surgery) should discuss the potential benefits and risks of this procedure with your surgeon. //

[Sqad]

LOL...you do make life complicated.

It is no good having an NHS hospital on your doorstep that does your operation, but for reasons of their own won't do it.
In other words, to her, if she wants the operation she has to have it done privately....as she did.

I don't know why she was turned down by the NHS but the reason matters not to the patient.

[Sqad]

Gromit...that is State medicine CRAP.

The surgeon decides to whom and to what extent his expertise applies....or it did in my time.........and no Governmental body would tell me who to operate on and to do what.

[Gromit]

Sqad

You are still assuming she was denied to save the NHS £40,000, but ypu have no evidence of that.

You do not know the finances of her NHS Trust.
You do not know how many similar NHS operationd the Fenchay Hospital performs.
You do not know how many private operations it does and why.

Without knowing any of that, your assessment of the NHS as CRAP is just based on pedjudice.

[Sqad]

Gromit.........you are being silly.

The little girl was refused operation on the NHS and she had to resort to Private Health Care.

To the parents and the little girl, does it matter why she was refused treatment.?

[boxtops]

I'm inclined to agree with gromit. Sqad says that the cost of this operation would be the same as six hip ops - so it might be, but that means 6 people don't get their hip ops because this one girl gets hers. 6 people waiting instead of 1. I hate to say it, but some it might well come down to numbers - and as gromit suggests, this hospital might have done its quota of these in this financial year.

This is but one child in many who has clinical needs - how would any of us prioritise?

[Sqad]

boxy.....this operation would not be done on a regular basis....to be honest, once a year or less in any trust may well be the sum total.

[boxtops]

... ^^ sqad, you do know why it wasn't done on the NHS, I put in a link - the application for it to be carried out wasn't approved by NICE - not enough evidence that it work.

[Sqad]

boxy....I know! I know!

But a central body elected on a political basis telling me what i can and cannot do is an anathema to me.

[jomifl]

Ironically the cost of lifetime support fort the girl would have cost far more than the operation.

[bazwillrun]

"how would any of us prioritise? "

and that is the nub of it, look at money we throw away eg my OP, illegal immigrants getting damages etc etc etc, flying lessons !!! Whot hte phhuk

you wanna prioritise, then stop giving to filth like that and use it for people who really need it.

this little girls parents for, whatever reasons the NHS wouldnt do it had to go begging to get the money to get the op done

as a result and the decency of the lottery winners it looks like she will be able to have a decent life....thats your freeking priority not scummy criminals of all sorts suing for damages etc etc etc, illegal immigrants giving us the run around and costing us millions upon millions year in year out

[Sqad]

...boxy....the Welfare State promised that they would look after you from cradle to the grave.....there was no mention of prioritising on the long journey.

[bednobs]

for treatment to be provided on the NHS it must be proven to be effective. This makes sense to me - there is no point providing treatment in the hope that it works, without the evidence it does, whether it costs £400 or £40,000, it's a waste of money.
for example, there is a medication that can help *some* people with restless leg syndrome, but in a vast majority of people it doesn't work. It is not cost effective to give it to everyone, therefore its use is restricted as a "low priority" treatment by NICE. If there is not the evidence that the operation is either effective or cost effective, then NICE won't approve it and it won't be given on the NHS

[Sqad]

boxy

\\\\\\ If there is not the evidence that the operation is either effective or cost effective////
and that is a matter of medical opinion.

[factor-fiction]

The 'prisoner' issue is a red-herring.
I don't know why sex change ops get preference over this- it seems odd but maybe there are reasons- eg the health service think it won't help or hasn't been fully tested. If it is a budget issue then presumably some sex change ops get postponed/rejected too for the same reason, but maybe we don't hear about it

[bednobs]

no, it's a decision that it made through RCTs