Thankyou Campbellking. He already attends his "breathe easy" clinic. It offers great support and a chance to talk to others with the same condition. The nurses there said to ask his GP who said to ask them! He has been on the Royal Brompton Emphysema Trial.(Jul2007) It is a blind trial. Patients won't know for a year(Jul2008) who have or who haven't had, the new stents inserted into the lungs... If he's one that hasn't had it then he will be offered the chance to have it done provided he is strong enough for surgery. He thinks he hasn't had it done as he hasn't noticed any difference. Hence the exercise!
Daffy 654 You need as much information as you can get. You are so young my heart goes out to you. The RBH is one of the worlds best chest hospitals. Contact Dr Shah 020 7351 8021 or
Dr Ed Cetti 020 7351 8029
or
[email protected].
Send an email, Tell them you're ayoung mum and you want to go on any future trials they may hopefully have planned. I hope they can help you.
Good luck and God bless you. Daffy Mouse