Fibromyalgia

[cariad13]

Please could anyone who suffers from this this tell me what kind of pain relief they take?
Thanks :)

[chinadog]

I've got several "algia's" cariad including mastalgia and costo chondititis "Athritus in the chest and rib area". Im supposed to take Brufen but I cant tolerate them so my gp gives me Co Dydromol. I try not to take too many due to the codeine content but they are good. Brufen is an anti inflammatory btw.

[cariad13]

Thanks Chinadog, I have taken both of those, I also don`t like Co Dydramol because of the codeine, at the moment I take Tramadol and Gabapentin, but they don`t seem to be doing much good and I was wondering if there was something else I could change to?
Thanks for your answer :)

[chinadog]

http://www.bbc.co.uk/health/conditions/fibromy algia1.shtml

[cariad13]

Thank you for this link Chinadog, it was very helpful.
I have to speak to the doctor about changing my pain meds, they are not working for me. I took Amitrityline once, but not for long, I felt like a zombie! Ibuprofen is an option, as you say it`s an anti infammatory too, I can`t take many anti inflammatories because they upset my stomach but Ibuprofen is okay. What is Mastagia? Is it something to do with the breasts?
Thanks again for your reply. :)

[thugulike]

Magnesium Maleate is a wonder cure for me. My doctor recommended it and I am virtually pain free. It is difficult to get though and my pharmacy has to order it specially. No side effects either. Don't understand why it works but it does.

[Eve]

I've got secondary fibro to general inflammatory arthritis and some other stuff.

I'm on sulfasalazine for the arthritis and amitripilyne for chronic pain relief and have codydramol and see an osteo and physio.

I have been trying to get out and about a lot more lately despite the pain, I love photography so it kinda distracts me but makes me feel better in myself like I'm not missing out so much.

I just have to make sure I factor in a lot of rest time as well to get some balance especially with work.

I've shyed away from so many things over the past few years but have been making a big effort lately.

I had a good rest day Friday then went back to where I'm from and went horse riding and quad biking Saturday. Was in a lot of pain after but it was so worth it.

Had another rest day Sunday then yesterday went to Blackpool for the day, just me and my camera.

Was in a lot of pain by the end of the day again but, again, it was worth it.

I made the mistake of not having another rest day before work today and am suffering a bit but in my head, the benefits outweigh the negative in a big way, psychological I guess, maybe not pain relief but pain management by endorphins maybe :)

[tufty7]

My Wife is currently in a massive flair up of fibro for the last 8 weeks, and has lived this painfull debilitating illness for the last 9 years , ,

she takes fentonyl slow release patches , diazapam, tramadol, metazapan and amitryptaline.......... and still the pain overcomes her , she is having a medical review later this month and hopefully we mite have a doc who thinks outside the box, and looks at her medication as well cos it isnt working!!

I will be trying that suggestion magnesium maleate, cos when you have your families lives taken over by this illness you will try anything ... best of luck learn to pace yourself.......

[cariad13]

Thanks Thugulike, I`ll ask at my local pharmacy about this, I`ve never heard of it and I`m more that willing to give it a try.
I am so fed up of this burning pain :(

[cariad13]

Boy Jenna do I know how you feel. I have days when I just can`t seem to function at all, and others where I force myself to get out and about just to feel that I`m living a normal life!
Sounds like you had a few great days out there!
Unfortunately I couldn`t take the Amitriptyline, I felt dreadful while on them and the codeine in the Co Drydramol is bad for me too as I have IBS and it affects that at times.
I am hoping my doctor will review my meds soon, I have taken liquid Nurofen Express with my other meds this past few days and they have helped a little too. Thanks for your reply,
Here`s hoping we have many better days :)

[cariad13]

Thanks for your reply Tufty7, I know how your wife feels, this flair up for me has been for six weeks now. I`ve been diagnosed with Fibro for the past 5 years, but I know I have had it for much longer, it took them about 12 months to rule out everything else under the sun too!
When I read up about Fibro it was like a light going on in my head, I thought thank heavens I`m not going mad and all these things I`m suferring are down to something REAL!
I have never heard of the slow release pain patches, I will definitely ask my doctor about those.
Your wife is lucky to have an understanding husband, happily I am too :)
I hope the medical review can come up with something to help your wife, I wish her less pain very soon.

[tufty7]

Thank You cariad 13, Here is a link that you may find interesting ,

http://www.painclinic.org/aboutpain-medication types.htm

You will find most of the drugs, uses, side effects etc etc that will allow you to suggest or ask your doctor about , perhaps he is not aware that the illness is more disabling to you at this time, No one deserves to live in pain at all , I would pester your doctor and get some wheels in motion, when you do find pain relief that works, please be aware to lower your doseage to an acceptable level so you can up it when you feel a "ruff time" coming your way .... (with your docs support that is!) Best of Luck !