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How Life Can Change Over Time

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Baldric | 10:32 Thu 30th Aug 2018 | Body & Soul
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Regulars will know that over the last 12 months or so Mrs B. has had Health problems.
We met in late 1984 married in 1987, never looked back.
In July last year Mrs B, Kate, had a 'Blackout' was taken into A&E due to Tachycardia and a certain amount of confusion, was there for 3 days, but no diagnosis.
This happened twice more in next 2 months, during the second of those episodes she 'fitted' while waiting for the Ambulance and again in the Ambulance Bay at the Hospital.
Another 3-4 days inpatient care, this time a tentative "It could be Late Onset Epilepsy"
About 3 weeks later one evening she stood up to go to bed, then bent down to pick her blanket up off the floor, before I could stop her she bent forwards, overbalanced, banged her head on coffee table and off to A&E again for 4 days this time. There was no blanket to be picked up only in her mind.
When we visited she wanted to know why we were covered in orange spots and could we please stop those two horrible men shouting, it was an all Female Ward, no men except well behaved visitors.
During those 4 days we received some very strange 'phone calls from her saying she was at a Hotel in Norwich, or she was on a Flight to Belgium, and also some quite rational ones talking about Family, Dogs etc.
She has been Episode free since last October, which is good, however her balance is very shakey, she cannot walk very well, suffers short term memory loss, gets the shakes a lot and is dilusional at times.
Is having lots of Tests, Examinations etc.
Obviously has surrendered her Driving Licience.
I have spent the last 13 months basically looking after a Woman I no longer know, she has changed so much, does not alter what I feel for her but it is bloody hard work, we just get on with it, and do what has to be done.
I have not written this because I feel sorry for myself because I don't, I'm not that sort of person.
I guess if there's anything I want to say it is 'Just cherish what you have 'cause you never know what's around the next corner

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Been out so only just picked up on this. Really sorry to hear what you have been going through, I know when you love someone you sign on for whatever comes but we all hope it won't happen. I am glad you have good support, and I hope you will have a proper diagnosis soon. It is so different when the enemy has a name and you know then if anything can be done. I knew that Dave...
19:32 Thu 30th Aug 2018
Baldric,
this sounds so like what my brother has been through.
So sorry to hear of your situation, Baldric.
Sorry to hear this Baldric. Tough times for you and family. Love conquers all....xx
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LiK and Emmie, Thank you very much.

Pumpjack, I wish you all the best

Andres, regular reviews of Medicines, this one is very effective, I can live with with the mood swings.

Eleena. I wish him well.
Baldric, has there been no diagnosis so far?
Baldric, you obviously adore her 'in sickness and in health'.
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Eleena, A suggestion of 'Late Onset Epilepsy' lots of tests ongoing , Neurology etc, trying lots of different Tablets.

Rockrose, it's what I signed up to do ;o)
My brother was diagnosed with this condition ...
https://www.encephalitis.info/limbic-encephalitis
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That ^^^ has been mentioned, another Neuro. appointment next week, we will get there.
He was taken in to A&E fitting. His gait over time was of a much older man, he has been left with short term memory loss.
I am so sorry to read this, Baldric. I wish you both the very best outcome.
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Tilly, . Thank you.
x
A very worrying time for you all.
Balders, not sure of your views but I will add you and your wife to my prayers....and yes.....cherish what you have is a valuable thought.
Very worrying and stressful, you must be watching her like a hawk (been there and got the t-shirt). Hope you get a diagnosis soon.
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Had to pop uut for 15 mins or so,
Thanks to everyone who posted in that time, appreciated
Baldric, I'm so sorry to read this, it must be difficult for you all to cope with. You are doing the best you can, as I am sure that Kate would do if the situation were reversed. My very best wishes to you both x
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Margo, Thanks,
We are a good team here, Me, long term First Aider, Tash, NHS Professional and long term friend of Kates via work and a long term guest, also Nat a colleague of Tash's another NHS Professional and short term guest (flooded out of her flat) they both give me some time off evenings and weekends, precious time for myself for which I am very grateful
It's good to know that you have 'back up' and are not having to cope on your own. Let's hope you get a diagnosis soon x

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