How Do I Tell This Guy About My...
Family & Relationships4 mins ago
Ashya King's Father Explains His Side
Posted in the other thread but nobody seems to be reading it.
Answers
Gromit, no one in their right mind takes a sick five year old, a week out of brain surgery, out of hospital and across borders in the back of a car in search of alternative medical treatment. What did they intend to do? ------------
09:53 Sun 31st Aug 2014
More about the Proton Beam Centre at The Christie Hospital.
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I used to work in Oncology at the Southampton General until December 2011. During my short tenure there we did send patients to Jacksonville, Florid for proton therapy if it was indicated, at the expense of the NHS.
We also had peripheral clinics in Jersey and paid for patients to come to Southampton for radiotherapy if RT was indicated.
No patient was ever denied life-saving treatment on cost grounds.
I am afraid that all to often patients and relatives think they know more than the experts and just assume they're getting a bum deal.
We also had peripheral clinics in Jersey and paid for patients to come to Southampton for radiotherapy if RT was indicated.
No patient was ever denied life-saving treatment on cost grounds.
I am afraid that all to often patients and relatives think they know more than the experts and just assume they're getting a bum deal.
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The treatment is centrally funded by NHS England. Oncologists have to refer a patient to a panel at NHS England, who then approve treatment abroad. That does not appear to have happened in this case.
It will ve interesting to see what happens next.
The treatment is centrally funded by NHS England. Oncologists have to refer a patient to a panel at NHS England, who then approve treatment abroad. That does not appear to have happened in this case.
It will ve interesting to see what happens next.
Some people don’t seem to be thinking this through. The little boy had brain surgery a week ago. I’ve checked the Southampton Hospital website and, as NoMercy has said the hospital does refer patients to the US, and to Switzerland, for this particular form of treatment, but the child’s doctors have said that it would be of no benefit to him. Now if someone can tell me where the sense is in dragging a very sick little boy, one week out of brain surgery, in the back of a car across borders in search of treatment, rather than leave him in the care of the hospital whilst they seek the treatment they think will help him, I’ll happily concede that they are right.
A friend of ours recently underwent proton therapy funded by the NHS in Florida. Apparently each case is different and some will be eligible for the treatment as the outcome is likely to be favourable. I have a feeling she was sent by Southampton Hospital. When in the USA she met several children having treatment NHS funded. She is raising money to assist the funding of the Proton Therapy machines in the UK.
I have viewed this clip twice and its quite clear that this father isn't some mad, religious loony, as he has been described. He is an intelligent, loving father, that just wants the best for his little boy. And I also can't see how he is a kidnapper. It would appear that the Hospital haven't been responding to the parents in quite the way that they perhaps should.
My brother was desperately ill recently, with a serious head injury, and we sometimes found the Doctors to be somewhat gnomic and not as honest and plain-speaking as we would have liked, so I know exactly where this chap is coming from. You feel so hopeless when a loved one is in Hospital, and also helpless. You desperately want to do something other than sit for days at the bedside, but a feeling of impotence grows and grows, and eats away at you.
It would appear that everything that could have been done for the lad hasn't perhaps been done. I say perhaps because we don't know the full story here. We only have this brief explanation from his Dad. As to the proton beam aspect, I can't possibly say that it would be best for Ashya, but then again neither can his Dad. I would have thought that treating a desperately ill boy, by googling on the 'net is a very highly problematic and risky process.
The lad clearly needs to be in a Hospital again with immediate effect. My heart goes out to his parents but a long road journey down to Spain was certainly not the way to treat him. He may indeed be able to move his feet, as we could see but his is still demonstrably extremely ill. He could have fitted during the journey.....he needs to be in Hospital.
Don't know what else to say other then I hope the authorities are not too harsh on this man, who perhaps hasn't been able to think as clearly as he should. Fingers crossed for Ashya.
My brother was desperately ill recently, with a serious head injury, and we sometimes found the Doctors to be somewhat gnomic and not as honest and plain-speaking as we would have liked, so I know exactly where this chap is coming from. You feel so hopeless when a loved one is in Hospital, and also helpless. You desperately want to do something other than sit for days at the bedside, but a feeling of impotence grows and grows, and eats away at you.
It would appear that everything that could have been done for the lad hasn't perhaps been done. I say perhaps because we don't know the full story here. We only have this brief explanation from his Dad. As to the proton beam aspect, I can't possibly say that it would be best for Ashya, but then again neither can his Dad. I would have thought that treating a desperately ill boy, by googling on the 'net is a very highly problematic and risky process.
The lad clearly needs to be in a Hospital again with immediate effect. My heart goes out to his parents but a long road journey down to Spain was certainly not the way to treat him. He may indeed be able to move his feet, as we could see but his is still demonstrably extremely ill. He could have fitted during the journey.....he needs to be in Hospital.
Don't know what else to say other then I hope the authorities are not too harsh on this man, who perhaps hasn't been able to think as clearly as he should. Fingers crossed for Ashya.
Naomi,
From the video, it sounds like they wanted to avoid the child having his brain zapped by Radiotherapy. They seem to think the level of radiation he would receive would be harmful to his good brain tissue. I do not know if they are right or wrong. The medical profession are not infalable, and parents are not totally ignorant.
From the video it seems they tried through proper channels to communicate and their letters were ignored. If that is true, then if they have made a wrong decision in getting their son to a better country for treatment, it is due to them not being properly informed.
From the video, it sounds like they wanted to avoid the child having his brain zapped by Radiotherapy. They seem to think the level of radiation he would receive would be harmful to his good brain tissue. I do not know if they are right or wrong. The medical profession are not infalable, and parents are not totally ignorant.
From the video it seems they tried through proper channels to communicate and their letters were ignored. If that is true, then if they have made a wrong decision in getting their son to a better country for treatment, it is due to them not being properly informed.
Gromit, no one in their right mind takes a sick five year old, a week out of brain surgery, out of hospital and across borders in the back of a car in search of alternative medical treatment. What did they intend to do? Knock on the door of a foreign hospital, present the doctors there with the child, and ask them to help? I can understand them disagreeing perhaps with the treatment offered, and I can understand them desperately seeking the treatment they think he needs elsewhere, but I simply cannot see the sense in them doing what they’ve done. That cannot possibly be in the child’s best interests. Poor little boy.
I have to agree with you Naomi, but desperately worried parents can and do things that are not always wise. I think we can presume that this child fell ill some time ago and the pressure on his Mum and Dad would have been immense, especially with such a large family to look after at the same time. Life tends to get put on hold when a close relative is this ill, as I myself can testify, and with a small child it must have been intolerable.
I just hope they are not treated too harshly when they return to Britain, if indeed they do return. As you say, poor wee lad.
I just hope they are not treated too harshly when they return to Britain, if indeed they do return. As you say, poor wee lad.
Naomi,
The doctors threatened that they would take out an Emergency Protection Order which would exclude the parents from seeing their sick child, and go against their objects to the proposed treatment.
It may have been wrong to move the child, but they were left with little alternative. If they had have stayed they would have been ignored and would not see their child.
It will be interesting to see what charges are brought against him, and whether the child does indeed receive radiotherapy on his brain.
The doctors threatened that they would take out an Emergency Protection Order which would exclude the parents from seeing their sick child, and go against their objects to the proposed treatment.
It may have been wrong to move the child, but they were left with little alternative. If they had have stayed they would have been ignored and would not see their child.
It will be interesting to see what charges are brought against him, and whether the child does indeed receive radiotherapy on his brain.
Mikey
// I just hope they are not treated too harshly when they return to Britain, if indeed they do return. As you say, poor wee lad. //
They have already admitted the International Arrest Warrant was bogus, what do you think they can charge them with?
// Although the arrest warrant was "based around neglect", Mr Shead said this did not necessarily mean the parents would be charged with that offence. "It purely gives us the power to arrest and then we will be able to speak to them," he said. //
// I just hope they are not treated too harshly when they return to Britain, if indeed they do return. As you say, poor wee lad. //
They have already admitted the International Arrest Warrant was bogus, what do you think they can charge them with?
// Although the arrest warrant was "based around neglect", Mr Shead said this did not necessarily mean the parents would be charged with that offence. "It purely gives us the power to arrest and then we will be able to speak to them," he said. //
Naomi ( 08:33 ) I think you may be right here. When you have a desperately ill child, you don't always listen terribly well. I suspect that what they wanted to hear was that the child was going to to be put on an air ambulance with immediate effect and flown to the States, which may or may not have been in the child's interest.
I strongly imagine, like any parent, they were doing what they thought best for their child. Whether they were right or wrong medically, remains to be seen. The first link posted on AB did say the hospital told them nothing more could be done. The parents understandably, weren't ready to give up.
Obviously, whatever happens now, I sincerely hope it's right for Ashya.
Obviously, whatever happens now, I sincerely hope it's right for Ashya.
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