I Know This Is In The Wrong Catergory, But Everyone Comes Here......

[Jeza]

On Friday we were assessed for costings for Mic's care. We were told we would have to pay full costings. (What a surprise, you work you save, you pay your dues. I wish we had pi$$ed it up the wall but that's another story.)

Anyway I asked about attendance allowance. Answer NO as Mic is not 65.

I asked about carers allowance. Another NO as I am in receipt of the state pension.

It's a good job I don't have a gas oven.

Are there any other allowances we may be entitled to? They must be NON means tested. Thanks (from an exhausted Jeza)

P.S I also asked about the lots of extra money being spent on electricity for washing sheets. buying sanitary products etc. Can you guess the answer.

[Mamyalynne]

Maybe PCT would have been a better place to mention....


Can you get incontinence products on the NHS?

What’s available on the NHS varies throughout the country. Each primary care trust (PCT) has its own contract to supply incontinence products and its own eligibility criteria. To find out if you can get your incontinence pads, products and appliances for free, ask your local district nurse (get details at your GP surgery) for an assessment. They can advise you on whether you're eligible. If you are, they can arrange for a regular supply of pads to be delivered to you, if your local service provides home delivery.
You should be supplied with as many pads and other continence supplies as you need. If this doesn't happen or you have any concerns, tell your healthcare professionals. If you prefer, seek advice from your local Patient Advice and Liaison Service (PALS), which can be contacted through your local PCT.

[boxtops]

Hi Mamya - the PCTs have been replaced by the CCGs in England since April 2013. The contracting/commissioning information still applies, but the PCTs are no more - in our county, 3 PCTs have been replaced by 8 CCGs covering smaller geographical areas. PALS is certainly still there!

[Mamyalynne]

Ah so my first info was right, best leave this to the experts.Sorry.

[boxtops]

I'm no expert to be able to answer jeza, mamya - only part of the current system in the reconfigured NHS...!

[Mamyalynne]

Gotcha, fingers crossed Jeza gets a result.

[Jeza]

Spoke to D/N on her first visit, not eligible she said. I also asked about a conveed. I'll look into it she said. Also asked about a chiropodist and bed rail bumpers. Her answer is always I forgot. I am thinking chocolate fireguard. I will attempt to pursue other areas.

[boxtops]

If she forgot, jeza, that's not good enough, and you need to speak to her Community Nursing manager - which is your local Community Trust? It's not acceptable to forget something vital like this - you may need to put it in writing.

[humbersloop]

Jeza, now the hurdle of getting mic home is cleared, remember you're finding your feet in a completely new situation. You still don't know what you can and can't control and it must feel pretty overwhelming.

Best wishes with it all, and I'm sure a B&C at the day's end isn't out of the way.

[Jeza]

Boxy, In my experience complaining about 'one of their own' is a bad idea, I will attempt to get round it by other means.

[Jeza]

Looking forward to it Humber, when Mic is bedded down.

[boxtops]

OK Jeza - then speak to the PALS team for your area, they'll be able to advise what the next step is. It may be that other patients are similarly suffering from this DN's lack of memory - if her line manager doesn't know, nothing will done about it. Don't just let it go, the DN service is paid to provide a service to patients like Mic, if they are not, someone needs to know.

[carrot99]

I buy my mum's incontinence pants from Boots on-line as you get 6 packs for the price of 5. Any small saving is a help.

[ferlew]

Isn't Carers Allowance awarded to the person needing care? And not the carer?

[choux]

Jeza, if you have been mis-informed by the DN you should complain to her manager - unless you want others to suffer the same. Complaining to 'one of their own' is a very good idea. The managers are required to check levels of knowledge/awareness and deal with staff accordingly. If there is substance to your complaint the managers invariably will ensure you are given all the assistance and guidance you could need.

peter pedant, the school leaver probably knows that DLA may only now be claimed by children under the age of 16 years. DLA for adults has been replaced by P.I.P.

[Ouzel]

Start a claim for P.I.P by telephone : [phone]

If you phone them, your claim form will be date stamped for the date you ring and any payment will be back dated to this date.

[boxtops]

Jeza, this might help re PIP, since Mic's not yet 65... https://www.gov.uk/pip/overview

[whiskeryron]

http://www.theargus.co.uk/opinion/letters/10560934.Criminals_get_better_treatment_than_senior_citizens/?ref=rc

WR.

[Dee Sa]

jeza you certainly have all my sympathy, its just like nobody gives a damn, have been there. I found PALS totally useless, we went to DAB [I think that's what it was] and they did all our appeals and were very sympathetic, talk to GP about prescribing sanitary products, also found most district nurses very uncaring, though not all of them. The only good thing I can tell you is that you still have Mic and he is where he would want to be, at home with you. If all else fails try going to your MP and tell them how let down you feel or write to Downing Street that sometimes works.

[anneasquith]

''found most district nurses to be uncaring '' how sad is that statement ?